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Tag Archives: kabuki

Diagnosis Day

Why we choose to celebrate the day Micah was diagnosed.

Posted bySarahJanuary 13, 2017January 13, 2021Posted inDaily life, MicahTags:boys, d-day, daily life, diagnosis, family, kabuki, kabuki syndrome, kids, life, love, rare disease, special needs, syndrome6 Comments on Diagnosis Day

Milestones

An update on how Micah is doing these days

Posted byAndrewSeptember 9, 2016Posted inDaily life, Journal, MicahTags:blog, blogging, daily life, inchstones, journal, kabuki, kabuki syndrome, kids, life, Micah, milestones, parenting, transition, update2 Comments on Milestones

I Have No Idea How to Talk About My Son’s Disabilities

My son has a rare genetic syndrome. That doesn’t mean that I know how to talk about it.

Posted byAndrewMarch 18, 2016Posted inDaily life, Journal, MicahTags:blog, blogging, dad, daily life, disabled, fatherhood, journal, journaling, kabuki, kabuki syndrome, language, life, parenthood, pc culture, politically correct, special needs, special needs child, words2 Comments on I Have No Idea How to Talk About My Son’s Disabilities

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