The enemy of the good
Category: Micah
posts about Micah, his journey, and growing up with Kabuki Syndrome
Diagnosis Day
Why we choose to celebrate the day Micah was diagnosed.
Milestones
An update on how Micah is doing these days
Waiting for the bus.
A frustrating morning waiting for Micah’s school bus.
It’s hard to wait
Micah waits for the bus.
Monday Morning Snaps
Some snapshots of the boys, sans pants.
I Have No Idea How to Talk About My Son’s Disabilities
My son has a rare genetic syndrome. That doesn’t mean that I know how to talk about it.
Continue reading “I Have No Idea How to Talk About My Son’s Disabilities”
Back to the Routine (and Learning How to Tidy Up)
Micah heads back to school, while Sarah and I learn how to tidy up
Continue reading “Back to the Routine (and Learning How to Tidy Up)”
My Little Convert
Everyday when Ezra is getting ready for his afternoon nap, Micah starts chanting,
“COOKIES! COOKIES! COOKIES!”
It’s part of the daily routine that when Ezra takes his nap, Micah gets a few cookies of some sort and gets to watch Netflix for a while. Nine times out of ten, Micah demands to watch “JEEOWGE!” (Translation: Curious George)
Two Word Combos
